Legal notice and privacy statement

Legal notice and privacy statement

Imagine Institute

 1. Legal Notice


1.1. Site publisher and host


The website found at the URL is published by Imagine Institute.

Imagine Institute – Institute for Genetic Diseases

Scientific cooperation foundation established by the Order of June 15, 2007 as amended, registered under number 499 166 510 00028 (French SIRET)

24, boulevard du Montparnasse, 75015 Paris, France; Tel: +33 (0)1 42 75 42 00


1.2. Website by:


91, avenue de la République, 75011 Paris, France


1.3. Publishing director and editor:

Laure Boquet, Executive Director



2. Accessing the site


By accessing or using the Imagine Institute's website, visitors (members of the general public, health professionals, journalists, students, donors and researchers) acknowledge that they have read and accept these terms of use. Imagine Institute reserves the right to amend these terms at any time.


3. Content


Information - Imagine Institute makes every effort to ensure that the information provided on this website is reliable and up to date. Errors and omissions may nonetheless occur. Visitors should therefore check the accuracy of this information with Imagine Institute and contact the Institute about any changes to the site they deem appropriate. Imagine Institute disclaims all liability for the use that may be made of this information and for any and all direct or indirect damages arising therefrom. As a result, Imagine Institute disclaims all liability:

  • for any inaccuracy, misstatement or omission relating to the information on this website;
  • for any damages arising from fraudulent intrusion by third parties resulting in changes to the information or other data available on the website;
  • and, more generally, for any direct or indirect damages, whatever the cause, origin, nature or consequences, even if Imagine Institute has been made aware of such, caused by any person accessing, being unable to access, or using the site, including any defects or viruses that may infect the visitor's computer equipment or any other property, and/or any damages caused by credit given to any information coming, directly or indirectly, from the site.


Type of information - The information contained on this website is medical in nature. It is intended exclusively to inform visitors. Under no circumstances should this information be used as a substitute for specialist medical advice from a healthcare professional.


Cookies - This site uses cookies to enhance your online experience and to gather statistics. Cookies are small text files stored on your hard drive to record technical browsing information when you visit our website. Some parts of this website will not work unless you accept cookies.


Hypertext links - The Imagine Institute website may include links to other websites or other resources available online. Imagine Institute has no control over these sites and may not be held liable for any damages, of any kind whatsoever, resulting from the content of these sites or external sources, and in particular from the information, products or services they offer, or from the use that may be made of such information, products or services. The visitor must comply with the conditions of use and bears full responsibility for their use of the website.


Website users, subscribers and visitors may not create hyperlinks to this site without Imagine Institute’s prior express authorization. Imagine Institute reserves the right to accept or refuse a hyperlink without having to justify its decision.


Availability - While every effort is made to keep this website up and running smoothly, visitors acknowledge that it is technically impossible to provide a site free of all defects, that such defects may lead to the site being temporarily unavailable, and that the operation of the site may be affected by events and/or occurrences beyond our control. Imagine Institute may, at any time, change or interrupt, temporarily or permanently, all or part of the website’s operations in order to carry out maintenance operations and/or make improvements and/or changes on the site. Imagine Institute disclaims all liability for changes to, suspension of, and interruptions to the operation of this website.


4. Intellectual Property

The entire contents of this website,, including without limitation, the graphics, images, photos, texts, videos, animations, sounds, logos, gifs and icons, and their formatting, are the exclusive property of Imagine Institute, subject to the rights of third parties.


No part of this website may be reproduced, distributed, modified, retransmitted or published, in whole or in part, in any way whatsoever, without Imagine Institute’s prior written and express consent. Failure to comply with this prohibition constitutes an infringement that may result in civil and criminal liability of the infringer.


5. Privacy Statement

Visitors do not need to disclose personal data to use this site.


Anyone who wishes to make a donation, receive the newsletter, contact, or apply for a job at Imagine Institute will have their personal data processed by Imagine Institute. These personal data will be used for the purpose for which they are intended, as long as Imagine Institute is in operation and provided the person has not expressed their opposition to the processing of their information. The legal basis for processing personal data is the pursuit of Imagine Institute’s legitimate interests. 


Some data are also automatically collected for internal statistical purposes when you browse our website, including cookies, information about the use of our website such as the areas visited, IP addresses, browser types, and how much time visitors spent on the site. These data are processed and stored for a maximum of five years.

Health data: Imagine Institute also processes some health data for research as part of its public interest mission. This information is stored securely, and pseudonymously so that first and last names are not shown. Health data may also be shared with Imagine Institute's private or public partners, in France or abroad. Anybody wishing to exercise their right to access their health data may do so by submitting a request to their doctor.

Pursuant to the French Act of January 6, 1978 as amended and the European General Data Protection Regulation (GDPR) No. 2016/679 of the European Parliament and of the Council of April 27, 2016, you have the right to access your personal data, and to rectify, limit or to object to our processing of your data.


You can exercise any of these rights by sending a request to the data protection officer.

You may also lodge a complaint concerning your personal data with the French data protection authority, the Commission Nationale Informatique et Liberté (CNIL).

Data controller: Imagine Institute, 24 Bd du Montparnasse, 75015 Paris, France